Post-Birthday Reality

[image: selfie of a me, a smiling white woman andmy happy teen son Leo, with sunlight streamingfrom behind. I am wearing a black t-shirt that reads "WTF?" In white block letters.] Leo's 16th birthday made November 9th bearable. He was so excited ....more

Change: Dislike

Leo will be sixteen in two days -- or on, as I like to say, the day after The Apocalypse. He was also born two days after the 2000 election, while the Dubya/Gore contest was still ... contested ....more

Small steps towards autism acceptance.

Yesterday Leo and I were in our favorite local Latino grocery store, which also happens to be the closest place in town that stocks his beloved Rosa (no really) brand whole wheat tortillas.During the checkout, Leo was being his usual exuberant self. The Latina cashier greeted him pleasantly, with a genuine smile, and asked his name. He whispered it ....more

You CAN Choose Where You Want To Live, If You Have Autism

Photo © Serena Snowfield/Flickr. Creative Commons License[Image: enhanced photo of a cozy cottage behind a flowery garden.] The San Francisco Autism Society recently published a rather alarmist article on autism and housing issues written by their president, Jill Escher, titled "You Can Choose Where You Want to Live... Unless You Have Autism." Here's a characteristic excerpt: "Almost every autism family I know is panicked about their children's futures ....more

Autism and Health Care: Excerpts From My Patients 2.0 Presentation

Video description: Red-headed white woman (me) giving a presentation on autism and health care at a professional conference. Periscope video is low resolution and sideways, apologies. I was honored to be invited to give a presentation on Autism and Health Care at the Patients 2.0 conference this past weekend, as part of the Health 2.0 2016 Conference in Santa Clara ....more

There She Goes

Iz, already bored before her first day of preschool[image: Blonde pigtailed preschooler sitting on the floor,yawning, & posing with a Rosie the Riveter lunch box.] Iz left for college today. An out-of-state college. A perfect-for-her college ....more

Today! Now! Give the IACC Your Feedback on US Autism Research Priorities!

Today is the last day for Americans to submit feedback to the IACC! Please let them know your autism research priorities. Why should you spend 30 minutes filling out this survey? ...more

Rolling Stone: Your Dehumanization of Autisic People IS The Problem

Rolling Stone just published a completely dehumanizing mainstream article about autistic people. Even worse, the article was written by a parent of a high-support autistic young man, and was given the title "Luke's Best Chance: One Man's Fight for His Autistic Son" -- as if the author is his son's champion, when in fact the father is exposing Luke's most vulnerable moments, with little to no understanding or accommodation of his disabilities. And, of course, the obligatory quotes from Alison Singer and Jill Escher about how autistic people need to be housed in group settings for their own safety, as if the autistic self-advocates who fight for desegregated housing don't care about safety as well as rights ....more

Five Big Mistakes Parents of Autistic Kids Can Avoid

If you're the parent of an autistic kid, you probably get advice thrown at your head from every angle, all day long. You may even be all done with advice. And I hear you, because I am you. But I also have had the great good fortune to be connected with some of the most insightful autistic and autism professionals and thinkers on this planet, who have transformed my parenting approach completely, and to the benefit of my teen son, Leo, as well as myself. ...more
TheRealTimVegas thinkingautism BlogHer shannonrosa 1 mistake every parents can avoid! HAVING NO ...more

The San Francisco Autism Society Deserves Better Leadership than Jill Escher. Here's Why.

Scott Badesch, President Autism Society 4340 East-West Hwy, Suite 350 Bethesda, Maryland 20814 July 22, 2016 Dear Mr. Badesch, I am writing to express my alarm over the unprofessional, divisive, and degrading behavior of San Francisco Autism Society President Jill Escher, and to request that the Autism Society reconsider having her lead our regional chapter.As a fellow Bay Area parent of a high-support autistic teenager, it is extremely distressing to see Ms. Escher use her position and formal SFASA social media to openly push questionable scientific positions, belittle the needs of autistic people who can speak while making them feel excluded from the ASA community, and frame autistic people in general (and her own children specifically) as catastrophes and “damaged,” rather than deserving human beings with specific needs ....more
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