When our hardships mold us for the better

We had just checked out at the grocery store, and I scooted the cart over to the loading area to bag my groceries while Brenna sat patiently in the front seat of the cart chattering away. We were at least 10 feet away from where the grocery store clerk sat at the cash register, when the clerk...more

Standing Together in Humanity

My beautiful child, Last night during your bath time, you asked me something for no apparent reason… something that made my eyes well up in light of the recent tragedy of a mass shooting in Orlando....more

{Celebrating Beautiful} Breaking the Code, by Kate Johnson

In blogging for the last 4 years, I’ve written about many different topics, but one theme that has remained constant has been my focus of...more

School’s out for the summer!

Kids are back on their bikes again, cruising the neighborhood. Neighbors are pulling their grills out in the evenings, and I’m hearing talks about vacations, pool days, summer camps and baseball games....more

What true acceptance looks like: that time Brenna took dance class

“I want to take a class like Connor!” The request began to come in weekly as I dropped Connor off at gymnastics class last year, and Brenna watched all of the young kids head into the gym together to swing on the bars, dance, tumble and play games. And so, at the start of the school year, we...more

Adding it up: matching your donations for Ichthyosis Awareness Month!

It all adds up. Each time someone reads a blog post to learn more, each time someone shares or connects with another, each small conversation with a child about the greatness found in different appearances or abilities… that builds upon itself to lead...more

Friday Favorites: May 20

Today is the final day to apply for my Book Launch Community for A Different Beautiful! Read more about my launch team and then go here to fill out a very short application. I have 100 spots open, and I’d love to see you be a part of this fun and encouraging community leading up to the release of my book! ...more

{Celebrating Beautiful} From Insecurity to Beauty Pageants, by Bailey Pretak

In blogging for the last 4 years, I’ve written about many different topics, but one theme that has remained constant has been my focus of...more

Harlequin Ichthyosis at 4 years old

Brenna lay back as I grabbed the tub of Aquaphor from its cozy warmer. I started to pull on medical gloves when she turned and said “I wanna wear gloves too! I wanna help!” “Well, you don’t need gloves to put it on yourself,” I told her, “but hold out your hand.” I scooped a small dollop of lotion onto her fingertips, and she began rubbing it around her belly ....more
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