Bio

When our daughter Brenna was born, the first thing I noticed was the thick whiteness that covered her body and her bright red eyes. Brenna was born with Harlequin Ichthyosis, a very rare and severe genetic skin condition. Physically, Brenna is much different that we expected, with a thickened reddish-colored skin that constantly flakes off and doesn't allow her to sweat. But we are discovering day by day, week by week, just how beautiful different can be.