Cwestlake

When our daughter Brenna was born, the first thing I noticed was the thick whiteness that covered ...   see full bio
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When our daughter Brenna was born, the first thing I noticed was the thick whiteness that covered her body and her bright red eyes. Brenna was born with Harlequin Ichthyosis, a very rare and severe genetic skin condition. Physically, Brenna is much different that we expected, with a thickened reddish-colored skin that constantly flakes off and doesn't allow her to sweat. But we are discovering day by day, week by week, just how beautiful different can be.

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  • Member since August 2012
  • Blogging since 2011
  • November 11, 1983
  • BHPN since May 2013

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