@ Home with a picc line and constant medications
I must say that this past week has surely gotten the best of me. It's like having a new born all over again. No sleep, bathroom stops, and constant IV or Picc line hookups serve as every two hour feedings!!!!! Now keep in mind that my kids are 10, 9, and 6, so none of the actual care of an infant needs to be going on anymore, but does it? As some know my daughter that is 9 was in the hospital for several weeks with Amoebic Meningitis It is by far the most fatal of all meningitis. We got to come home because I volunteered myself to learn how to care for her at home because she was sick and tired of being in the hospital. I was tired of being there as well. There are only some many cartoons and coloring pages and books to read and games to play before you just get plain sick of it. So the nurses put me on the fast track to learning how hookup and flush and run meds every two hours for my daughter. She is still upset she has the picc line and now that I have been doing this for a week I feel like a pro!!!
Something she said last night opened my eyes to the full range of possibilities that this may scare her for life. She said "mom, why is everyone scared of me, everyone but you". The light bulb flipped on in my head and raced back to the way my in laws and even my own husband acted around her like they were scared to touch her!! So I simply said " Rissa they aren’t scared of you they just don’t want to make you sick". This is sort of true because she also has had an aspleenectomy (she has no spleen) and she can get sick easily and has proved to do so since it was removed. The doctors told me now since she has had amoeba that she will forever be immuno compromised and depending on test results she may or may not have to have this picc for some time.
So what am I to do, with school 12 days away? How do I equippe her with the emotional stability she will need to survive and will I regret the decision if I choose to home school her? It irritates the fire out of me when I see ANY child get made fun of and kids can be brutal these days, and since this has happened, the part of her brain that controls emotion has been affected, she is having issues with lashing out even on her own family. I still get on to her for it, but also feel bad at the same time. What am I to do is there a right and wrong answer?? Why do I feel bad about every little thing I do when it comes to her. I love my daughter no matter what and I just want others to feel the same. What about ya'll, what would you do in my shoes? Or am I just being over dramatic???